Saturday, February 1, 2014

It's been such a long time....

After some encouragement from friends it's time to start blogging again.

Our family has had time to heal and although we are much better today than we were 5 years ago, we still have a long way to go. Losing a child, a young child at that, is hard to explain and most people can't even imagine the level of emotion and grief.
The reason for this blog is to get back in touch with many of those who followed Cody and our family during the hard days. Many of the regular friends who kept in touch on a daily basis are now on Facebook or check into our website. This will be a way for those who are still into blogging and like the format that blogs offer can stay on top of what we are doing. It's my goal to let you know where, what and how Cody's Crew and it's members are spreading the word about neuroblastoma and what we are doing to fight this awful disease.
Over the past 5 years we have had a bunch of fund raisers and events. In September of 2012 we awarded our first $100,000.00 grant to (New Approaches to Neuroblastoma Theropy) NANT. Clinical Trial N2011-01: Phase II Randomized MIBG study to be exact. It is very likely that we will be awarding our 2nd such grant at our 6th Annual Cody's Crew 5K on September 28th. I recently found an article that was done about us. Here it is..
As we continue to get the word out about neuroblastoma and Cody's Crew we are always looking for the next person who knows somebody that knows somebody that will help us take Cody's Crew to the next level. We dream of one day awarding $500,000.00 grants for research and more. Till one day there is no need to fund research for this disease. That will be the day that a cure is found. 
I hope to get my board members signed up so they might contribute to this blog. We want to keep you all updated with all that we are doing..

It's good to be back.. :)

No comments:

Post a Comment